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>> Forums > Ovarian Cancer Patients Chat > A million questions

Forum: Ovarian Cancer Patients Chat

Topic: A million questions


Rachel Brown Posted: 29 July 2007 11:21 AM  

Member Since:
20 August 2008
Posts: 16

I bet you have a million questions!  Post them here, and see how your OC community can help you out.  You will have a shared wisdom, that will help each other immensley. I can't wait to see how much you can help each other!

Rachel



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Rachel Brown, Co-Founder
Jules Posted: 13 October 2007 6:14 PM  

Member Since:
13 October 2007
Posts: 3

Hi, my name is Julie Wheeler and I was diagnosed with Ovarian Cancer in October 2005. I want to share my story but am not sure if I'm in the right place on this site. I have just been told of this site from another friend whom I met while undergoing Chemo treatment. I'm so pleased that there is somewhere to go in nz to talk with others. I was fortunate to meet a lady who has and still is an inspiration to me. Her battle has been going for 7 years and her weekly phonecalls were and still are invaluable. She gave me encouragement and hope and bouyed my spirits through some miserable times. I would love to do the same for others.

Also, I would like to reccommend a great little book for you to read. It is called Q and A and the Author is Vikas Swarup. Many of my family and friends have read and enjoyed it.

Jools Posted: 14 October 2007 9:37 PM  

Member Since:
5 October 2007
Posts: 35

Hey Jules, You're a tad further down the track than me.... as my journey is only 16 months on. I think sharing your story anywhere is going to help everyone. But, maybe... registering for woman of the month might be a good start. I've not been able to write mine in full..... although I can talk of it until the cows come home. HHmmmmnnn is your friend under Barrie Evans by any chance? He likes to cite the woman who has sent him a Christmas card every year for seven years after a ghastly prognosis at one stage. Perhaps she can be the inspiration for us all... if she writes her story too.

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Jools
Nungzy Posted: 28 November 2007 2:15 PM  

Member Since:
28 November 2007
Posts: 1

Hiya.  You are both further down the track than little ol' me; diagnosed 17 Nov '06, I don't think I'll ever forget that date!  When my doctor told me I was actually relieved to hear that I wasn't a hypochondriac although my partner and I had spent a ruthless month of testing with lots of people talking at us but not really saying anything!  I think they were all too scared to mention the big C word for fear that I would run off down the road screaming but to tell the truth, my partner and I dealt with it a lot better when we finally knew what we were dealing with.

And yes, we are dealing with this together so it's a comfort for us to know that we have somewhere that we can come to offer and receive support.   

One little question before I go- does anyone know where I can get any info on surgical menopause? 

Rachel Brown Posted: 29 November 2007 2:22 PM  

Member Since:
20 August 2008
Posts: 16

Hi Nungzy,

Thanks for your posting!  We are going to add in a section on surgical menopause soon - I need to have some meetings with relevant groups first.  However, you could try http://www.earlymenopause.org.nz/default.asp which I just found now for you. Where in the country are you?

Rachel

 

 



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Rachel Brown, Co-Founder
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Jools Posted: 29 November 2007 2:43 PM  

Member Since:
5 October 2007
Posts: 35

Hello Ningzy, Welcome along to "sharing the journey". I can't offer anything on the surgical menopause issue, so I hope the site that Rachel has found proves useful. I know all about feeling like a hypochondriac, and always feel really unwell just before the next lot of results are due. I recognise that's just stress wrecking psychomsomatic (sp?) havoc on my body.... but I too remember almost a sense of relief when there was a logical reason at the outset for all those vague symptoms that individually pointed to something else. I hope you find some support amongst us..... just knowing that others understand where we're at on the roller coaster of hope and despair is valuable, I've found.

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Jools

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