Member Since:
19 April 2010
Posts: 2

Hi, I'm realy new to this site, thanks to Bryony Simcock,who told me about this site today, I was diagnosed with cervical cancer three years ago,my whole world was turned upside down,I had my treatment in Wellington Hospital, radiation, chemo, and I was the first person there to have bracca treatment with their new machine, I did'nt quite get my two year clearence, to be told I have now got Vulva Cancer aswell, so I'm having my lymph nodes in my groin,both sides, removed,in 4-6 weeks, if they're no good, then more radiation-chemo, they said that a patchup can be done, but can't say,that it won't spread, or to have everything removed and reconstruction surgery, bladder, bowel, the works, I'm 56,never been sick in my life, except for the flu, and when I fell of my motorbike and broke my arm, I'm scared and worried, Cheers Molly

Member Since:
17 November 2008
Posts: 9

Hi Molly,

My name is Moana and I have had vulval cancer twice. First time minimal and second time my  nodes and vulva removed. Not so much fun when you are 33. I have been connected to silver ribbon since I read an article in the Womans Weekly about a lady who had the same condition as me almost two years ago. I too have been told that it may come back and spread so am taking one day at a time which is all you can do. I am in Wellington also so if there is anything I can do, please let me know. There is not a lot of support out there for women with Vulval Cancer as I have discovered but fantastic that Silver Ribbon provides as much support as they can for us.

Moana

Member Since:
20 August 2008
Posts: 7

Hi Molly

My name is Nicky (38 yrs) & i also have had vulval cancer. My story is in the vulval cancer chat room. I had my lymph nodes taken out however the results came back clear so didnt need radiation. Not sure where you live because it said you had surgery in Wellington but that Bryony Simcock put you onto this website. Bryony was my surgeon so if you are in Christchurch, a fabulous person to talk to is Glenys Cummings. She is a nurse specialist at Chch Womens in the gyne ward. I am currently  on 4 monthly checks at Chch womens with Bryony & i see her tomorrow. Glenys is a fabulous person & so easy to talk to. Please let me no if there is anything i can do for you.

Take care

Nicky

Member Since:
19 April 2010
Posts: 2

Hi Moana and Nicky, thanks for your replys, I have just been told today, that i will be having my lymph nodes done on the 25th of May at Wellington hospital, and from then I will be waiting to hear when I have my pelvic exenteration done, I'm scared and have a lot of things to think about, I will also need reconstrution surgery and two bags as a resulats, I live in Taranaki, I am really lost, so anything will help. Both of you take care, Cheers Sherryl, [ my real name]

Member Since:
17 November 2008
Posts: 9

Hi Sherryl,

If there is anything I can do around the 25th May, please let me know. I have been under two exceptional specialists in Wellington and hope that you have someone that takes as much care with you during this time as I did.

I am due for a check up but hate going. I am starting to understand when things play up (like they are now) and know when I book myself in it has gotten bad enough to warrant a biopsy - however there is not a lot left to biopsy!

Look after yourself.

Kia Kaha

Moana

Member Since:
6 August 2010
Posts: 1

HI Molly and everyone else on this site.  I am very new to this, Bryony Simcock also told me about this site this week on my visit for my 3monthly check up (Christchurch).  I was diagnosed with Cervical Cancer towards the end of January this year, had my operation on March 16th, (Radical Hysterectomy) with nymph nodes removed also, luckily I have not had to have radiation or chemo. 

It has certainly been a roller coaster year to date, with my 16 year daughter walking out of home a week after I was home from surgery, to date I have not seen or spoken with her, the only contact via Facebook and texts, and these are very limited in response etc.  So in a way my mind has been pre-occupied with my daughter and any meltdowns I have had (and boy there have been a few) I have put down to my daughter's absence and not of the cancer, or possibly a combination of both.  According to authorities 16 year olds can actually live where-ever they want!!!, bany goes our parental control,  (She is with her father, who is not a good role model {another story lol}).

I have decided that life is definately too short and I have just returned from 10 days away on the Gold Coast with my partner (who has been so supportive and is wonderful), he and I had a great holiday, although I must say I wasnt too keen on those  surgical stockings on the flight.  The weather was great and we relaxed with lots of walks along the beach and then of course the mandatory shopping.

I look forward to corresponding with people on this site and even just writing down thoughts etc will be helpful. Take care :-)

Jo

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